Wednesday, June 22, 2011

Parkinson's(?) and the Full Time Aide

Liz called last night to talk about what is going on with Mom.  I'll summarize it the best I can.

Mom has been falling a lot and, as you probably know, everyone is concerned about this.  She also has a problem that I think was mentioned before: she sometimes cannot get her feet to move when she is trying to walk.  She'll be walking fine, pause for some reason, and then be unable to start walking again.  A number of people have suggested that this and the falling sound like Parkinson's, though she does not have some other typical Parkinson's symptoms.  The doctor (on Monday?) started her on Parkinson's medication to see if that makes a difference.  Liz tells me that it should be pretty obvious in a few days whether the medication is helping.

Meanwhile, Lima said that with all the falling they don't want her alone and she should have an aide 24/7.  So, now she has full time aide.  The hope is that the Parkinson's medication will help her significantly such that she will not need the aide for more than a short time.  The 24/7 care is not cheap and so far as I know it is not covered by Medicare (if anyone knows otherwise, let us know!).  One good thing is that her aide (at least the one Liz mentioned) is very nice and has been good company for Mom.

There was also some talk about whether she could/should move out of assisted living and into the unit that provides a higher level of care.  Currently, there are no openings like that in Lima (where Dad is) so she would have to go to a different facility.  I think we all hope she can stay in assisted living, but  we'll see.

Anyway, that is pretty much it for now.  I expect to report back once we know whether the new medication is helping.

Oh, and Liz spent a lot of time with Dad yesterday going over all the cards and letters people sent for his 85th.  Thanks to all of you who did that!

Monday, June 20, 2011

Birthdays and yet more falls

We all got together for birthdays on Saturday at Liz's (dad was 85 -- thanks to all who sent a note!).  Beautiful day and we had a great time.  Neat to get Mom and Dad out.  I think they had a lot of fun and it was good for all of us to see them, though we kept them up past bed time.

Dad seemed the same or better than the last few times I've seen him.  Mom is having more trouble.  It took a long time just to walk to the house from the car because her legs simply would not move for her.  Once she got rolling, it was not too bad, but if she stopped it was hard to get them going again.

Then she fell later that night (@ 2 AM) on the way to the bathroom and again the next afternoon by the elevator.  According to Liz:

Brenda (the nurse who called after the second fall) said she thinks Mom mostly falls backwards and lands on her back.  She looked up the results of the urine test from last week (apparently they did some other tests as well, I don't know what), and the results of all were negative.  Too bad, in a way.  She said the symptoms remind her of Parkinson's, so I think I'll ask the neurologist about that this week.  I believe they must've ruled it out earlier on, but what's to say that something new hasn't developed?  Anyway, there aren't blood tests for this sort of thing, so it's possible it wasn't obvious earlier.  Or something.  Who knows.
 

Monday, May 23, 2011

Yet Another Fall

Just got this from Liz:

Just a short report here - Mom apparently had another fall last Fri. morning.  I got a message from the nurse, but it was too late to get hold of them for any details.  The message said they had found her sitting on the bathroom floor, checked her over, she looked OK, no head-bumping this time.  When I mentioned it to Mom, she said it wasn't a fall, that she was sitting on the toilet, having summoned them to help her with changing her pants.  Today when I was over there, I said to her that she seemed to be having much more trouble moving around than usual, and she admitted that her side hurt quite a lot.  So I looked, and she has a large blackish bruise (with a bit fading to yellow) over her left ribs under her arm, right under the bra line. We went to the nurse's office, and they think the looks of the bruise matches the timing of the Fri. fall, which Mom apparently doesn't remember.  We made arrangements for her to have some Tylenol regularly for a few days (and they gave her the first dose), then we went to CVS.  But she was having trouble moving her limbs well again.  It reminded me of her condition the morning of Uncle Tom's funeral service, when she was coming down with bronchitis.  Remember how her limbs didn't seem to move "on command" and she was so-o slow?  It's very worrisome.  The walker got a bit too far out ahead of her a few times, and she got "frozen" and couldn't make her legs catch up.  I was sorry we had even gone anywhere - I didn't let go of her arm the whole time.  She did say that "things had gone downhill" recently, which presumably means "since last Fri. morning," but she doesn't really know.  She said the bruised area was causing her difficulty with many actions, like lying herself down on the bed and standing up from sitting on the bed, so I hope that pain and stiffness is the cause of all the sluggish movement.  I went back to the nurse's office later (by myself) and told them I was worried and asked them to keep a closer eye on her than usual for a few days.  Because of the fall, she is already having her vitals checked daily, so they will notice if her temp rises (if she's starting some other infection).  They also said that if she is still complaining of pain tomorrow or so, they may see about a rib xray.

Tuesday, May 10, 2011

Dad is Home

Talked with Liz.  He came home yesterday afternoon.  Doing OK on the major things, but his bedsore is worse.  Sounds like is was very tired and went right to sleep.

On another note, Mom had another fall yesterday morn.  I think nothing too serious, but she banged her knee and head again.  Sounded like it may have had to do with the fact that her bed is kind of high so she can't sit on it with her feet on the floor.  The PT folks are going to see what they can do to remedy that.  Mom did get out for a long day with book club friends after that and was pretty shot by the end of the day according to my sources.

Friday, May 6, 2011

Dad Doing OK

The doctor just called Liz and said that Dad is improving.  They plan to keep him in the hospital over the weekend and hope to send him home Monday.

Tuesday, May 3, 2011

Dad Back in the Hospital

Got this from Liz yesterday morn:

"The nurse at Willowbrooke called me last night at 2:30AM to say that they had just sent Dad to the hospital.  She had called Mom also.  It seems that Dad started with a hard, moist cough yesterday (Sun.) morning, which led to a temperature of 101.8 at 6:00PM.  They called his doctor, gave him breathing treatments, and put him on oxygen.  The doc ordered antibiotics and an xray (for Mon.).  At 2:30AM or so, Dad was very agitated and his temp didn't respond to Tylenol - went up a bit, in fact.  So they sent him to Riddle Hospital - Sophie said the antibiotics would take some time to be effective, and they didn't want to wait for that."

I talked with Liz (and a little with Dad) later. After doing time in ER, he was admitted.  He  has pneumonia, which is not surprising.  He also has a bedsore (which they had been tending at Lima).  Liz and Mom visited him yesterday afternoon.  Rebek also stopped by on her way to Maryland (with a car full of belongings since she is moving!).  Dad's temp is down and he seemed in pretty good spirits.  I think Liz said they are doing some cultures to determine further treatment.  We are really hoping this stay is a lot shorter than last time.